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Adolescent Research Subjects Wanted (Ages 12 - 21)
"Study of Adolescents with Down Syndrome and Their Families"
This study includes parents and their children with Down syndrome between the ages of 12 and 21. This is a relatively easy study, consisting of a number of questionnaires for parents to complete about their children's behaviors, as well as about parent-family stress and coping strategies. The teens with Down syndrome are given a brief cognitive and language assessment (which is videotaped for later coding). They pay $ 75 for completion of the study.
http://kc.vanderbilt.edu/studyfinder/report.aspx?diag=9
Brian Skotko MD
Published work from adult sibling
http://www.brianskotko.com/index.php?option=com_content&task=blogcategory&id=4&Itemid=7
"Down Syndrome: Toward Optimal Synaptic Function and Cognition"
http://www.ninds.nih.gov/news_and_events/proceedings/down_sydrome_2005.htm
Kennedy Krieger Institute
Dedicated to improving the lives of children and adolescents with pediatric developmental disabilities through patient care, special education, research and professional training
http://www.kennedykrieger.org/
National Institutes of Health draft report regarding their research plan on Down syndrome issued October 2007
While public comment on this has closed, you may still submit comments
http://www.nichd.nih.gov/publications/pubs/upload/NIH_Downsyndrome_plan.pdf
Stanford University School of Medicine - Center for Research and Treatment for Down syndrome
Rapidly and effectively appling research discoveries to useful treatments
http://dsresearch.stanford.edu/
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