Resources
Medical
Adolescent Research Subjects Wanted (Ages 12 - 21)
"Study of Adolescents with Down Syndrome and Their Families"
This study includes parents and their children with Down syndrome between the ages of 12 and 21. This is a relatively easy study, consisting of a number of questionnaires for parents to complete about their children's behaviors, as well as about parent-family stress and coping strategies. The teens with Down syndrome are given a brief cognitive and language assessment (which is videotaped for later coding). They pay $ 75 for completion of the study.
Visit Here
Brian Skotko MD
Published work from adult sibling.
Visit Here
Kennedy Krieger Institute
Dedicated to improving the lives of children and adolescents with pediatric developmental disabilities through patient care, special education, research and professional training.
Visit Here
National Institutes of Health
National Institutes of Health draft report regarding their research plan on Down syndrome issued October 2007
While public comment on this has closed, you may still submit comments.
Visit Here
Stanford University School of Medicine
Stanford University School of Medicine - Center for Research and Treatment for Down syndrome
Rapidly and effectively appling research discoveries to useful treatments.
Visit Here